Connect with our local chapter:

The Huntington’s Disease Society of America: social workers/support groups in New England Social Workers:
  • Connecticut Chapter Social Worker only: Mary Dunleavy, LICSW, or 203-993-0488
  • Massachusetts, Rhode Island, and New Hampshire: Kara Keegan, LICSW, or 508-446-7705
  • Maine and Vermont: Please contact the regional office 978-905-5588
Support Groups:
  • HDSA groups are caregiver only or mixed. Mixed refers to groups which are open to caregivers and people with or at risk for Huntington’s disease.
  • We highly recommend you contact the group leader before attending your first group as on rare occasions groups are cancelled due to weather or coverage.
If you do not see a group near you, contact Kara Keegan or 508-446-7705

CLICK HERE to find online support Groups

If you would like to start a support group, contact Jennifer Simpson, HDSA Assistant Director of Youth & Community Service at​

Caregiver support group meets the 1st Saturday Bimonthly 11:00 a.m.-12:30 p.m.
February, April, June, August, October, and December
The Falls 
​2300 Washington Street Newton, MA 02462
Cheryl Sullivan: or 603-809-4555
South Shore 
Meets Evenings monthly
Braintree Manor Healthcare
1120 Washington Street
Contact group before attending
Meredith Tornaritis:
Mixed support group Bimonthly Tuesday of every other month
7:00 p.m.-8:30 p.m.
The Potpourri Plaza: 2nd Floor Conference Room
​241 King Street Northampton, MA
Amy Fowler: or 413-582-3908
Mixed support Group meets 3rd Saturday of the month 10:30 a.m.-12:00 p.m.
Beverly Hospital Garden Conference Room
85 Herrick Street Beverly, MA 01915
Mirta Uliva: or 978-317-2391
Mixed support group meets one evening per month
6:30 p.m.-8:00 p.m.
Tewksbury Library 2nd floor study Room #1
300 Chandler Street Tewksbury, MA 01876
Cheryl Sullivan: or 603-809-4555
Mixed Support Group Bimonthly 2nd Saturday of every month 10:00 a.m. - 11:30 a.m.
(6PM-7:30PM after February)
UMASS Med Center: Benedict Building
55 Lake Ave North, Worcester MA
Kara Keegan: or  508-446-7705
Contact group leader first for dates and times of next meetings and parking details

Mixed support group meets third Thursday of the month 6:00 pm to 7:30 PM
William Backus Hospital
326 Washington St Norwich CT
Deborah Pausig, LMFT,CT or  203-985-8246
North Haven 
Mixed support group meets first Thursday of the month 6:30 to 8:00 PM
5 Roger Ave North Haven CT
Deborah Pausig, LMFT,CT or  203-985-8246
Meets the Last Thursday of the month
7pm to 8:30pm 
Mary Dunleavy LMSW Operation Hope
636 Old Post Road Fairfield, CT
203-216-6266 or

Mixed support group meets the 4th Wed of the month
6:00 PM - 7:15 PM
St. Joseph's Hospital
Chapman Conference Room, 2nd floor
360 Broadway Bangor, Maine 04402
Nancy Patterson: or 207-669-5212

Rhode Island 
East Providence 
Caregivers group meets 3rd Tues of the month
6:30 pm to 8
Waterview Villa
1275 South Broadway East Providence, RI
Jean Baxendale: or  401-487-8621
Mixed group meets first Tues. of the month
6:30PM to 8:00PM
Tockwotton on the Waterfront
500 Waterfront Drive, East Providence, RI
4th floor pub
Alexis Derdarian:

Mixed support group meets 2nd Tues of the month
5:00 to 6:30PM
Vermont Medical Center Fannie Allen Campus
790 College Parkway Colchester VT
Dunbar Room Free Parking or
Mixed support group meets 3rd Sunday of the month
1:00 to 2:30PM
Rutland Regional Medical Center
160 Allen Street, Rutland, VT
Deb Johnston: or 802-353-9449

New Hampshire 
Every 4th Saturday of the month
10 AM to 11:30 AM
Derry Library
64 E Broadway, Derry, New Hampshire
Wendy Landry: